When a doctor gives you a terminal diagnosis, many times they say something like, “Get your affairs in order and enjoy life.” At that moment, you just nod and say, “Okay.” Then you go home and you then you stop to think, “Just what does that mean?” Especially with dementia, it is imperative that you revisit all of your estate planning documents as well as some additional documents while the person with dementia is still has legal capacity – the ability to understand and appreciate the consequences of his or her actions. So what are these documents that you need to consider? First, you will want to have Powers of Attorney (POAs) in place for both financial and legal decisions as well as a Healthcare Power of Attorney for medical decisions. Let’s start with the financial POA. This document will allow the person with dementia (the principal) to name another person (the agent) – usually a spouse or trusted family member – to make financial decisions as well as other legal decisions w...
As I sit in my house, just Coco (my dog) and me, I wonder just how different my life is now that we are “social distancing”. Before I placed Stephan, we were already practicing social distancing because of his dementia. We didn’t leave the house to get groceries, to dine out, to go shopping, to travel, to visit friends or family, or pretty anything else that required walking out the front door. The most we were able to do together in the months prior to his placement was to attend church and that was with a lot of preparation and help. The big difference now is that my house is completely empty. Before he was placed, there was someone to whom I could make comments while watching TV or a movie. I had multiple aides coming into the house to help me care for Stephan. Hospice workers also came on a regular basis. Now the house is silent except for the sound of my keyboard. I have labelled myself a shy extrovert. I love being around people, but I hate meeting new people unless w...
I am quickly navigating a new normal. Stephan went into the state veterans home last week. He is learning to adjust to the home and I am learning to live in a very quiet house. This time last week I had aides twelve hours a day, a bath aide three times a week, and a nurse twice a week coming to our house. This week it is just me and the dogs. Last week I couldn’t leave the house without telling the aide where I was going or arranging for someone to be here if I didn’t have an aide. This week I keep forgetting that I can just leave. Last week I was managing medications, making sure he was eating, helping the aides with transfers, making sure we had enough of everything, and keeping the aides and the nurse up to date on the latest symptoms. This week I am a little lost as I try to fill my time. I realized this week that I don’t like normal because it keeps changing. Just about the time I get used to our new normal, it changes again. I’ve done the research and I know that as the disease p...
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